The side effects that never stopped
- Hair-loss, antidepressant and acne drugs — taken by millions.
- For some, the side effects never stop, long after the last dose.
- We fund the research to end them — and fight to get them recognised.
Three medicines. The same story.
Finasteride for hair loss. Isotretinoin for acne. SSRIs for depression. Different drugs, one pattern — and for some people it does not end when the prescription does.
Post-Finasteride Syndrome
Finasteride / Propecia- Hair loss and prostate pill, taken by millions
- Blocks a hormone linked to mood and sex drive
- For some, symptoms outlast the prescription
PSSD
SSRIs / Antidepressants- One of the world’s most prescribed antidepressant classes
- Can cause lasting sexual and emotional numbness
- For some, symptoms outlast the prescription
Post-Accutane Syndrome
Isotretinoin / Accutane- Severe acne drug, often prescribed to teenagers
- Can trigger sexual, cognitive and emotional symptoms
- For some, symptoms outlast the treatment
PFS / PAS / PSSD Summit 2026
In April 2026, Dr. Kenneth Peters organised the first medical conference on PFS, PAS and PSSD together, bringing urologists, researchers and patients into the same room.
From evidence to treatment
Professor Roberto Melcangi’s team at the University of Milan is uncovering the biological mechanisms behind PFS and PSSD.
The next step is human clinical trials.
“We are no longer in the dark. The evidence is strong. Now we need to take the next step.”
University of Milan
Help build the evidence
The registry is what turns individual accounts into something researchers and regulators can act on. It takes about three minutes, and you can stay anonymous.
What is being reported
Dr. Will Powers on His Genetic Research Into Post-Drug Syndromes
Robb interviews Dr. Will Powers at the PFS/PSSD/PAS Summit 2026 about the genetic patterns he's found after years of collecting data from people affected by PFS.
Read more →
Dr. Kenneth Peters on Organising the First PFS/PSSD/PAS Medical Summit
The urologist who organised the first medical conference ever held on PFS, PSSD and PAS together tells us why he stopped prescribing finasteride, and what 1,100 patient survey responses showed him.
Read more →
Good Morning Britain: Robb Dixon Speaks Out About Post-Finasteride Syndrome
Read more →You do not have to work this out alone
WhatsApp peer support groups+
Four small, private groups for people living with PFS and PSSD — UK, Scandinavia, Benelux/France/Italy, and US/Canada. They are for people on our registry.
Patient support library+
Guides, coping strategies and what to bring to an appointment, written for PFS and PSSD specifically.
Reporting a side effect+
How to file with the MHRA Yellow Card scheme, the FDA, or your own national regulator — and why it matters that you do.
Nothing here is medical advice
Do not stop a prescription without speaking to your prescriber — stopping abruptly carries its own risks. If you are in crisis, the helplines at the foot of this page are answered any hour.