The Conditions
Three medicines. Side effects that can carry on after you stop taking them.
Post-Finasteride Syndrome (PFS)
Finasteride, Propecia, Proscar. Sexual, brain and thinking symptoms that stay after you stop this hair loss drug.
View condition →Post-SSRI Sexual Dysfunction (PSSD)
SSRIs, SNRIs, antidepressants. Sexual and emotional side effects that do not go away after you stop.
View condition →Post-Accutane Syndrome (PAS)
Isotretinoin, Accutane, Roaccutane. Lasting harm to body and mind from an acne drug, often given to teenagers.
View condition →What connects them?
All three follow the same pattern. Most of the people affected are young.
- Symptoms carry on after the medicine is stopped.
- Early evidence points to epigenetic change - a change in how genes are read.
- Few doctors know these conditions exist.
- There is no approved treatment.
Two things you can do
Join the registry, then report your side effects
- Join the registry in three minutes - no diagnosis needed.
- We keep you updated on research and remind you to report.
- Then report what happened to your own regulator.
550 people in 62 countries have joined.