Join the PFS & PSSD Registry
– Make your voice heard

Too many patients suffer in silence due to underreported adverse drug reactions, leaving these conditions misunderstood and ignored. By signing up, you become part of a united effort to push for change, drive research, and raise global awareness. Together we can ensure better recognition, support, and solutions for those affected.

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PFS and PSSD patient registry
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SIDEfxHUB PFS & PSSD Registry

The dashboard below displays the current number of PFS and PSSD patients registered in the SIDEfxHUB database, highlighting our growing community and collective effort to support research, awareness, and advocacy.

PFS Patients

5287

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PSSD Patients

7087

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Last update: November 2024

Help Us Build a Global PFS & PSSD Patient Database

By joining the registry, you join a comprehensive database of PFS and PSSD patients worldwide. This database will serve as a vital tool for communication and recruitment in future research studies, ensuring you have the opportunity to participate in advancing knowledge and treatment options. By signing up, you ensure a direct email line to act quickly when opportunities arise to make a difference.

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Built for the Community, Inspired by Your Voice

“For years, I felt like my struggles were invisible. A united registry is the first step toward being truly seen. By contributing my data, I’m helping researchers and raising awareness here in Germany and worldwide.”

PSSD Patient, Germany

“The lack of data has held us back for too long. In the U.S., it’s hard to get people to understand the seriousness of PFS. A global database will finally give us the tools to show the scale of this problem and connect patients with research opportunities.”

PFS Patient, United States

“The only way forward is through unity. With a patient registry, we can create a louder voice. Every person who signs up is helping to build the foundation for better research, awareness, and hope for the future.”

PSSD Patient, UK

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SIDEfxHUB

Charity Registered in the UK as “SIDEfxHUB”
UK Registered Charity Number: 1203385

Contact us
contact@sidefxhub.com

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