Join Our Vision of Developing a Collective Patient Data Platform

At SIDEfxHUB we want to build a Collective Patient Data Platform for PSSD and PFS patients, essential for providing patient support and to accelerate research in finding treatments. This app enables symptom tracking and direct data contribution, supporting crucial research efforts.

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Streamlining Global PSSD & PFS Patient Data

By collaborating globally, we can create a robust data platform that pools health data from around the world, enhancing our understanding of PFS and PSSD. This collective effort can accelerate research, democratise access to breakthroughs, and drive significant health improvements worldwide. Together, our shared data becomes a powerful tool for advancing treatment options.

Patient Data Platform Prototype Preview

Empowering Patients to Drive Research

Symptom Tracking

The app allows patients to log symptoms daily and monitor their own health progression. With consent, data is shared with researchers dedicated to finding a cure.

Advance Research

The app, connected to a comprehensive database, offers researchers a rich source of patient-generated data. With this data researchers can accelerate the search for effective treatments and potential cures.

Enhance Advocacy Efforts

The app compiles individual symptom data to illustrate the collective impact and support advocacy. This quantifiable evidence can inform healthcare providers, researchers, and policymakers.

SIDEfxHUB

Charity Registered in the UK as “SIDEfxHUB”
UK Registered Charity Number: 1203385

Contact us
contact@sidefxhub.com

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